I took DD to her primary doctor today as a follow up for her ER visit. He did prescribe her more valium, but only another 10 days worth. I wish he could have seen what a difference it has made to her day to day living, but all he's worried about is it being an addictive substance. Not so much about helping with pain and making those tight muscles relax. My mother has been on valium since I was a child and takes 3 times as much. We understand that it can be abused. But when the doctor is in charge of prescribing it, I don't see the issue. It's not like we're going to go out on a street corner for it. Just use it until things ease up and then wean off.
She has no reflex action in her left leg. Didn't matter where he tapped the thing on her knee or ankle, it didn't kick. He also poked her and there was no reaction. Her leg has been numb for a few weeks. So something serious is going on, but we won't know much more until the MRI on June 2nd. She restarts physical therapy on Saturday. I hope it helps and doesn't make things worse.
Then even if things are serious, her weight may be a detriment to getting surgery if she needs it. They say lose weight like that is an easy thing when you have to take prednisone every day to live and it makes you gain weight. I know what she eats. We don't have junk food in the house and she doesn't go anywhere to buy food or have an income to do it. I'm lucky if I can get 1200 calories into her in a day because she is so nauseated all the time and she isn't even able to cook her own food because of all the pain. She is not overeating. If anything she doesn't eat enough. It would help if her pituitary worked properly. And her digestive system. Her inflammation level in her blood work is off the chart, not to mention her neutraphils are crazy high.
I just want a healthy kid. Is that so much to ask? Why does she have to have five diseases, something wrong with her back, hip, and leg, and a liver tumor? How much can one body take? But sure, doctor, let's worry about addiction instead of quality of life, okay? Because that's more important than being able to function on even a basic level.
/Rant
Mostly a Rant
May 27th, 2020 at 02:59 am
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