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Mostly a Rant

May 27th, 2020 at 02:59 am

I took DD to her primary doctor today as a follow up for her ER visit. He did prescribe her more valium, but only another 10 days worth. I wish he could have seen what a difference it has made to her day to day living, but all he's worried about is it being an addictive substance. Not so much about helping with pain and making those tight muscles relax. My mother has been on valium since I was a child and takes 3 times as much. We understand that it can be abused. But when the doctor is in charge of prescribing it, I don't see the issue. It's not like we're going to go out on a street corner for it. Just use it until things ease up and then wean off.

She has no reflex action in her left leg. Didn't matter where he tapped the thing on her knee or ankle, it didn't kick. He also poked her and there was no reaction. Her leg has been numb for a few weeks. So something serious is going on, but we won't know much more until the MRI on June 2nd. She restarts physical therapy on Saturday. I hope it helps and doesn't make things worse.

Then even if things are serious, her weight may be a detriment to getting surgery if she needs it. They say lose weight like that is an easy thing when you have to take prednisone every day to live and it makes you gain weight. I know what she eats. We don't have junk food in the house and she doesn't go anywhere to buy food or have an income to do it. I'm lucky if I can get 1200 calories into her in a day because she is so nauseated all the time and she isn't even able to cook her own food because of all the pain. She is not overeating. If anything she doesn't eat enough. It would help if her pituitary worked properly. And her digestive system. Her inflammation level in her blood work is off the chart, not to mention her neutraphils are crazy high.

I just want a healthy kid. Is that so much to ask? Why does she have to have five diseases, something wrong with her back, hip, and leg, and a liver tumor? How much can one body take? But sure, doctor, let's worry about addiction instead of quality of life, okay? Because that's more important than being able to function on even a basic level.


4 Responses to “Mostly a Rant”

  1. Creditcardfree Says:

    Ugh, so awful for her and you as her mother. You are right to be upset. Have you ever considered a functional medical doctor opinion? My understanding is they do so much more testing looking for root causes. I'm praying for her. 🙏

  2. mumof2 Says:

    I'm sorry you all have to go through stomach doesn't work properly and because I only usually eat dinner I have gained so much weight and its because my body stores it because I can't eat anymore...probably one of the issues your daughter is having...have you tried for a second opinion sounds like she is getting worse under his care...I have started looking at the medical medium books it about healing the body in a natural way maybe worth a look he also had a fb page etc...a lot of people have tried his methods and had success...I haven't really done much with mine yet as waiting to get through my hubbys treatment then can focus on me...I wish you all the best know what its like to have a chronic illness and to have a daughter with a chronic illnesses...although she isn't as bad as your daughter...keep you in our thoughts that you get some answers soon and she can be on the mend

  3. LivingAlmostLarge Says:

    I am so sorry. I am praying for your daughter.

  4. VS_ozgirl Says:

    Your poor girl... I am so sorry to hear she is so unwell and in pain... can you get a second or third opinion?

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