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Medical Money and Cystoscopy Results

November 15th, 2018 at 05:49 pm

The good news is that at least the insurance covered the cystoscopy 100%. There will be ten hours of overtime on tomorrow's paycheck. It is earmarked for the medical fund, though some of it may have to go to pay for DH's crown since the dental insurance, which said they would pay 50%, denied it when it was actually billed. DH has to look into that and also see if he was signed up for the wrong plan and correct it for next year, because he needs another crown.

The dentist says we can do a payment plan, but I am not down for that. We'll pay outright with the OT if we need to. Fortunately there will be another 10 hours of OT on the next paycheck, too. Again all earmarked for medical. I want to build up the medical fund so that when the deductible starts over in January we have plenty of cushion to cover it. I had hoped to have the full deductible amount in there by January, but the dental issue may make that impossible.

TMI Medical:

Well, according to the urologist, there is nothing wrong with my daughter's bladder. No reason for why she peed blood for weeks and why it is still leaking. At least the bleeding has stopped. But the pain hasn't. I am going to call them tomorrow and see if there is a pill or something she can go on that might stop the leaking issue. Otherwise, I think they are done with us. Which sucks, because there is obviously an issue.

I am not sure where to go from here. I am still convinced she has endometriosis and it is strangling her organs from the outside. Endo does not show up on anything. The only way to diagnose it is to do exploratory laparotomy and they won't do that due to her weight because all the gyno surgeons in my state are chickens and more afraid of a malpractice lawsuit than failing to help their patients. And she can't lose weight due to the hypothyroidism and gastroparesis and adrenal issues.

Having dealt with endometriosis myself until the hysterectomy at 33 and knowing that her paternal grandmother also had it before hers, and knowing that they now know it runs in families and since she has all the symptoms, I am pretty darn sure. I just don't know what to do about it. I mean, she did just fine with the gall bladder surgery even though it had to be in the hospital instead of the surgery center so it isn't like surgery can't be done on her. It's an issue of won't.

We have gone to specialist gynocologists in Seattle and they won't do it, either. All they want to do is give you a pill or an implant and send you on your way. But that doesn't always help. It might prevent new stuff from growing, but it doesn't make the old stuff go away and stop strangling organs if adhesions have formed on them.

The endocrine doctor suspects PCOS, but since her pain was never confined to ovulation, I think it is endometriosis. They have many of the same symptoms. When I first was diagnosed, they tried to push PCOS, but I knew what I had based on the limited research I could do (pre-internet, y'all, I used books). And I was right. And I am 99.987% convinced I am right this time. But being right doesn't matter if doctors can't be bothered in treating you because of your weight.


My mother is still not speaking to my son, which is making the house extraordinarily peaceful. She is acting just fine with everyone else. DS is actually relieved. She can't argue with him if she's not speaking to him. We'll see how long that lasts. She'll need him to do something for her sooner or later and I'll push it if she tries to get DH to do it instead, but not before that. I'll say he's too tired and she needs to ask DS instead. DH has been working a lot of OT so it is true.

She needs to stop with the silent treatment. It only punishes her, not her intended target, and it is outright childish. And it only works as a weapon if it bothers the person you are doing it to. I think she wants him to apologize, but since he isn't the one in the wrong, I'm not going to make him. She needs to be the one to do it, but I can count on one hand the number of times my mother has truly apologized for something she has done, so I am not holding my breath. And by truly I mean saying she is sorry for what she did as opposed to I'm sorry you feel that way, which is not in any way, shape, or form an apology. It's an apology dodge. And she doesn't even do those ones often.

This is going to bug me for a bit, but whatever. I am not going to fix it. They may be my monkeys, but this is not my circus.

5 Responses to “Medical Money and Cystoscopy Results”

  1. creditcardfree Says:

    So frustrating you cannot find someone to agree with your diagnosis or if agree to do the surgery. I continue to pray for your daughter daily.

  2. CB in the City Says:

    This would probably be difficult for you, but I would recommend going to Mayo, if it's at all possible. My SIL had similar runaround for her Crohn's disease at her home hospital and didn't get any help until she went to Mayo, where she had a totally different experience.

  3. lurker Says:

    Regarding your daughter - Does she have insurance through a regular, big insurance company? If so call them up and ask for a case manager or navigator or complex case specialist to be assigned. They don't necessarily advertise these services and the first person you talk to might not know what to do, but keep trying. They can help you get to specialists and work with the doctors to look into different options.

  4. livingalmostlarge Says:

    I have friends in the same boat of endometriosis. She's had IUD 3x because they won't do the hysterectomy though she's had 4 kids and is DONE. Her husband has had a vasectomy (it failed) and they told her it's enough. If she had c-sections they would have done it but cutting her open isn't the key. She keeps on trying different meds stuff. She gets terrible migranes.

    I've had cysts and I think a mild case of endo . I won't do an IUD because the hormones make me nauseous and the copper IUD I suspect I'm allergic. But if I had a c-section I might have also had a hysterectomy like my grandmother and my two aunts. My mom suffered never having got one.

    Damned if you do and damned if you don't.

  5. crazyliblady Says:

    I also had endometriosis and just like with your doctor, no allopathic treatment worked. I tried Lupron, which is torture by the way, pain medications, other hormone drugs, and burning it out, but nothing helped. What did work was eliminating all soybeans from my diet and eating organic fruits and vegetables when possible. I have eliminated plastic as much as possible. I also now eat only meat and eggs that comes from range fed and antiobiotic and hormone free animals. Antibiotics, hormones, pesticides, and herbicides are called endocrine disruptors and cause all kinds of havoc in the body. I am not a doctor, but I got this information about endocrine disruptors from a book called What Your Doctor May Not Tell You About Menopause by John R. Lee. I wish you and your daughter well.

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