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We Live at the ER Now

August 3rd, 2018 at 06:06 am

I spent 7 hours at the ER with my daughter yesterday. DH has taken her back tonight. Over two weeks without being able to hold down her food. This is her third visit in less than 2 weeks. I don't understand their inability to make this stop. It's like they don't even want to try to get to the bottom of it. She says she feels like her body is shutting down and dying. It shouldn't be this hard.

Posted in Medical Issues and Spending | 12 Comments »

12 Responses to “We Live at the ER Now”

  1. mumof2 Says:
    August 3rd, 2018 at 08:45 am 1533285926
    1533285926

    I have severe nausea with my migraines ask them for ondansetron..its for cancer patients but it treats nausea and vomiting so well worth asking....hope she is better soon...something is wrong...can you take her to another hospital?

  2. creditcardfree Says:
    August 3rd, 2018 at 11:29 am 1533295745
    1533295745

    I am so so sorry. Any chance you could get her to the Mayo Clinic? Praying for your family.

  3. Smallsteps Says:
    August 3rd, 2018 at 12:04 pm 1533297857
    1533297857

    There is never anything more frustrating then this type of situation. I went through a Major health issue with one of my kids and myself at one point and found the only thing to do was become very pushy demanding answers. I hope you encounter someone who can help you not just send you on a revolving door "try this" plan.

  4. J Says:
    August 3rd, 2018 at 02:30 pm 1533306650
    1533306650

    That is very frustrating, but as someone in healthcare, the ER is often not the place that is able to give final answers- it was never set up that way, unless you have something simple that can be diagnosed with one test that is available in the ER (CT scan, blood test that comes back the same day, etc). The ER is the first step to help people start to feel better and triage who needs to come into the hospital, but most people end up needing to follow up with their doctor/specialist to diagnose complex conditions.

    Smallsteps- while it's important to advocate for your family members and patients are expected to ask questions, I guarentee you that being "pushy" does not help, it just alienates the people trying to help you and makes everyone's day worse for no reason. Nobody is saving the "good" medical treatment only for patients who are pushy about things. Also, trying things is usually the only rational way to approach medical problems- we don't have the technology to predict which patients will respond to which treatments perfectly, and I would be concerned about a provider who wasn't honest that if a treatment doesn't work, you may need to try another option.

  5. rob62521 Says:
    August 3rd, 2018 at 03:44 pm 1533311044
    1533311044

    I'm so sorry. Praying for your family.

  6. Marie Says:
    August 3rd, 2018 at 04:05 pm 1533312302
    1533312302

    This must be so very hard and scary. I hope answers are forthcoming! It probably won't be any help at all but here is a link to a NY Times article on a teenager having problems keeping food down. They go through all sorts of possibilities, and even if they haven't figured the girl's problem out, maybe one of the problems listed will hit home with you.

    https://www.nytimes.com/interactive/2018/06/20/magazine/netflix-diagnosis-series-lashay.html

  7. Dido Says:
    August 3rd, 2018 at 05:43 pm 1533318238
    1533318238

    So sorry DD is having such problems and I hope she gets to a doctor who can find a resolution for her soon!

  8. Thrifty Ray Says:
    August 3rd, 2018 at 06:39 pm 1533321565
    1533321565

    Oh LR, I am so sorry. Poor DD! {hugs} to you all and prayers for a resolution!!

  9. Sue Says:
    August 3rd, 2018 at 07:36 pm 1533324963
    1533324963

    I am so sorry - I wish there were something we could do to help but prayers are always there!!!! It is so hard now knowing and not being able to help - it took them almost a year to diagnose ds with lupus and in that year there was nothing we could do and we just watched this 16 year old boy walking with a cane....I am praying they find out what is going on NOW and can treat it so she has a better quality of life at such a young age!!!

  10. Joanne Says:
    August 4th, 2018 at 06:14 pm 1533406476
    1533406476

    So sorry that your daughter is going through all of this. Seeing her in pain ,and not getting a solid answer is so tough. I think that someone mentioned, could you take her to The Mayo Clinic? Is there another large teaching hospital close to where you live? Maybe you could try for an appointment? The reason I say this is , sometimes they seem to come up with answers more quickly. They see everything, all cases. Going to the ER , of course you take your daughter when she is sick, hoping for answers. I hope that you can get a GI DR , soon. I work @ large Boston Hospital. I am appalled at the thought of a nurse , or any staff person not washing their hands. I am also a nurse. Wishing your daughter relief soon, and that she gets the correct diagnosis, and treatment very soon..

  11. crazyliblady Says:
    August 4th, 2018 at 11:06 pm 1533423999
    1533423999

    REading the NYT article where it discusses POTS made me think of this blog. The author has POTS and has found massive relief in a lectin free diet. Perhaps that could be of some help to you.

    https://lectinfreemama.com

    The author's success is based on a book called Plant Paradox by Dr. Steven Gundry.

  12. FrugalTexan75 Says:
    August 14th, 2018 at 12:38 am 1534207125
    1534207125

    {{hugs}}

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