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Virginia Mason Update

November 1st, 2019 at 10:52 pm

We had the consult with the VM hepatology department for my daughter's liver tumor and it looks like we just get to play wait and see some more. Since DD is at no risk of getting pregnant in the next few years, and because her Prednisone dose is so low they do not think it will encourage tumor growth we just watch it for now. They don't generally like to operate until the tumor is 5 cm and hers is 2.7 cm. They are going to have her liver enzymes checked and in 6 months she will get another MRI and then in a year another one, just to keep monitoring it.

I'm not getting great sleep right now so I've been doing a lot of crashing during the day. I think I'm still worried, because to me a tumor has no business being in her body. And maybe it just takes me back to my own. I have lived with systemic diseases for all of my adult life and now my daughter is having to do the same thing and sometimes it is just so much to handle.

Okay, well, I've been procrastinating doing NaNo all day, so now that I've gotten this post taken care of, it is time to get to work.

4 Responses to “Virginia Mason Update”

  1. Petunia 100 Says:

    I'm with you on that, I would be anxious to part with the tumor. How is your daughter generally feeling?

  2. creditcardfree Says:

    I think it's good they are being cautious. Surgeries have risks too. Maybe you need to find information on tumors that reverse. I have known one person that this was the case, and have read of others. Obviously we are all individuals, but I find it fascinating how the body can heal.

  3. Jenn Says:

    I second CCF's idea. Since you know you have monitoring scans coming up, you may be able to get feedback on the measures you take to improve her health. I saw an interview that resonated with me where the point was made that the tumor is not the problem - it is a symptom of the problem. So instead of wishing it away, be thankful that you have it as an indicator to show the effectiveness of your efforts. He said that slowing, halting, or reversing the tumor are all positive signs.

  4. rob62521 Says:

    Hope you can get some good rest so you don't make yourself sick over this, but I totally get the worry.

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