Well, I'm learning a new instrument. My son talked me into buying a bass ocarina. It is a plastic one, not a ceramic one, because lighter is easier on the rheumatoid arthritis. An ocarina is a type of flute. It's shaped like a sweet potato though. If you play any of the Zelda games you've seen one. I have some experience with a regular flute and a one octave wooden flute and have messed around with the Tonette which is a one octave song flute as well.

It's also treble clef which is the same as the violin, strum stick, and the right hand on the piano and organ. Aside from the bass clef for piano and organ's left hand, I also know the alto clef for the viola. But treble is easiest to pick up a new instrument in.

I've done 4 lessons so far and can play a half dozen songs. I find it funny that no matter what instrument I have learned over the years they always start with Mary Had a Little Lamb and Hot Cross Buns. I've also mastered Ode to Joy (also early in every instrument), Frere Jaques, Long Long Ago, Jingle Bells, Gently Row, Twinkle Twinkle Little Star, and a couple others that I can't play at tempo yet, but can muddle through. Today will be my fifth day practicing and Brahm's Lullaby is in that lesson, so grown up music is coming.

When I do my new lesson, I always do all the songs from the previous lessons first and some of the fingering exercises. It helps to cement stuff in even as I move on to new lessons. I've found it is the best way for me to learn. I kind of do immersion when learning a new instrument.

One of the things that really helps me with this time of year and fighting seasonal depression is keeping my mind active and being challenged by something. That's why I tend to work on playing music or learning French more in the winter and early spring. I also take 5000 IU of vitamin D and use a happy light.

I started taking Moringa about ten days ago and it has made a huge difference with my RA symptoms. I also seem to be sleeping better, my skin is clearing up, and I have less muscle soreness from my fibromyalgia. It's not gone, but it is there. I am waking up feeling like I slept, which is really nice. I still tire out very easily and have to pace myself, but the enervating exhaustion is gone most days. I'm feeling better than I have in a long while. They tout it as a miracle tree, and I don't know about that, but it does help along with the Embrel and the Hydroxychloroquine.

And I've felt up to making meals a lot more often, too. Which helps with the food budget a lot. Tonight we are having herb baked chicken. Spice Islands has this Garlic Herb Seasoning that comes in a big container from Costco and it is our new go to seasoning.

I don't even miss Lawry's anymore or Paprika that much, which used to be our go to seasoning before my daughter had to quit using any spice that was hot (as opposed to warming like coriander, cinnamon, nutmeg). This stuff has been fantastic on chicken, beef, and salmon. I haven't tried it yet on pork or lamb or other types of seafood, but I can't imagine it won't be good. I've been looking for a long time to find an all purpose seasoning so this makes me very happy. It's the little things in life, you know?

Well, for once this diagnosis is not for my daughter, it is for me. I have been officially diagnosed with fibromyalgia on top of my rheumatoid arthritis. So my compromised immune system is even more compromised than they thought. I have always felt my immune system was non-existent.

She's going to have me get an MRI on my hands to check for something. To be honest, I was having a hard time focusing on what she said because of how much pain I am in today and I also have a cold so my head is just too full to think.

I have crashed and burned with NaNo. I just have so much pain in my hands I don't want to type for long periods of time. I am thinking about getting a voice to text transcriber and try writing that way, but I haven't even begun to look into the cost of those things.

After my appointment with the rheumatoligist, I went to the lab for a blood draw. They took four or five vials. She's running tests for more things and doing a repeat test the insurance likes to have done every year.

I'm so tired. I slept well last night, too, but every bit of me just wants to crawl back into bed at 4:00 in the evening and forget about doing anything else, like making dinner, for the rest of the day. I wish I could find a way to not be so exhausted all of the time. It makes me not care about money at all. Just spend it and get take out is not an attitude I like coming from myself, but it is there more and more often. Ugh.

We had the consult with the VM hepatology department for my daughter's liver tumor and it looks like we just get to play wait and see some more. Since DD is at no risk of getting pregnant in the next few years, and because her Prednisone dose is so low they do not think it will encourage tumor growth we just watch it for now. They don't generally like to operate until the tumor is 5 cm and hers is 2.7 cm. They are going to have her liver enzymes checked and in 6 months she will get another MRI and then in a year another one, just to keep monitoring it.

I'm not getting great sleep right now so I've been doing a lot of crashing during the day. I think I'm still worried, because to me a tumor has no business being in her body. And maybe it just takes me back to my own. I have lived with systemic diseases for all of my adult life and now my daughter is having to do the same thing and sometimes it is just so much to handle.

Okay, well, I've been procrastinating doing NaNo all day, so now that I've gotten this post taken care of, it is time to get to work.

I ordered a couple things off Amazon last night. I bought a 4 pack of 100 ct dye free Ibuprofen. I can, on occasion, find one bottle at Walgreens. We all would prefer to have our own bottles, but that has not been the case. I don't know why they never have it in stock or keep so little in stock, but it is getting frustrating. We have four Walgreens in town. One would think they would have more than one bottle between the four of them. They all carry it.

Then I bought some lens wipes for our glasses. I have been really unhappy with the Walgreens brand of wipes lately. I've had a lot of issues with them either being completely dried out, or being drenched so much that you have to then use a dry wipe afterwards. The brand I am trying had five stars. We'll see how good it is.

I did manage to get another package of the breakfast sausage I like and pick up a couple packets of hot dogs yesterday, too, along with some milk. I spent $20.18. I almost bought grapes, too. They had a sample of these yellow grapes (technically white, but they were very yellow) and they were very sweet and at first I liked them, but then I got this weird aftertaste up in my palate that was like almost burned caramel. I asked DH if he got it, too, and he said yeah, and he didn't like it. So we put them back. I am glad they had samples. I wish more stores would put out fruit samples, especially when bringing in something new.

I did get my steps in yesterday, but I don't think I will today. I'm having a bad joint day with the shakes in my hands. They were so bad that I had DH season the roast and put it into the Instant Pot for me. I figured if I did it, we'd end up with floor flavored seasoning, not my favorite. LOL

MIL says she will cover our hotel costs and food costs for going to Virginia Mason. That will be a relief. With having to buy the dishwasher I didn't want to have to spend an additional $300 for this visit.

We are getting new medical in January. It's Regence Blue Cross/Blue Shield. Cadillac insurance. It will cost a little less, too. The deductible will be the same, $3000. And there will be a FSA of up to $2700. I'm not sure of all the details yet, but apparently you could write a check in January if you needed to for the full amount and they'd just take it out of the paycheck through the year as you go. It does have to be used up by 2 months into the following year, but I can't even remember a year when we didn't have $2700 in medical expenses so that will never be a problem.

I don't know what the out of pocket max is, or the per person deductible yet. DH is going to see if they have a .pdf or a print out so I can go over it. Dental and vision will stay the same as they are different programs. Although I am thinking about bumping up to the better dental because DH needs to get a crown and I need to repair a chipped tooth.

I wonder if the HSA can be used for dental or just medical. I'll have to have DH ask.

Yesterday and today were rough days physically. I had my last physical therapy session yesterday and they really put me through the ringer. They had me fill out a form at the end which was the same form and I filled out in the beginning and then compared them and the changes have been dramatic.

Things I didn't even realize had changed, like being able to pick up a grocery bag from the floor instead of having to have it put on the counter for me or standing at the sink for fifteen minutes, that kind of thing. A lot of other things have gotten easier, too. My core strength, my leg strength, my range of motion. I am walking further distances unaided. Not to say that I don't use my cane at all, I do on a particularly bad day, but for the majority of the time, I haven't had to in weeks.

I'm pretty sore today, but I also took my shot yesterday which tends to exhaust me, so I just stayed in bed for most of the day and spent some time writing.

I have set a goal to try to finish the first draft of my novel in November. I've never done NaNoWriMo before because for the last several Novembers things went to heck in a handbasket. This is the first time I don't think it is going to. I don't know if I will do it officially or unofficially. I mean, there is all the stuff with my daughter's liver, but the appointments for that will be limited and then if we have to stay a few days after surgery that is a ton of writing time for me that will be pretty much uninterrupted. But mostly I am just back in the mood to work on it again.

I am halfway through seventeen chapters and 44,270 words in and I am aiming for 100,000 to 115,000, so under halfway. The goal in NaNo is 50,000 in 30 days or 1666.67 words per day. I tend to write 4000 to 5000 every other day when I am motivated. I usually need a day off in between due to my hands not being able to handle that kind of typing daily. Maybe I won't finish, but I will get a lot closer to the end and if I finish in December I will be happy.

Then I will edit the second half (the first half has been edited a lot already) and then set it aside for a few months before reading through it again, editing again, and then have a couple of beta readers go over it before figuring out the next step. I don't know if I will try the traditional publishing route or just get an editor to go through it and help me improve it and then self-publish. I am investigating both ways.

Then there is the issue of I think what I have written might really be the second book in a trilogy and not the first, so I might have to figure out if that is true or not and write the first one before deciding on publishing.

I also have to decide if this is a YA novel or not. I don't want it to be, but many of the characters are under 18. More of the characters are adults and have as big of a role as the children, though, but it does revolve around the teens and kids and their power as they grow up. But in the sequel most of them will be adults. Ah, it's a boggle. I'll just have to finish it first, and go from there.

The doctor wants to remove my daughter's liver tumor, but we have to go down to Seattle to have it done. He wanted to send us to the UW, but I explained the problems we've had with the doctors there and the identity theft stemming from their hack. I asked about Virginia Mason instead and he was happy to do that. They have a good hepatology department.

He said the issue is the steroids that she has to be on for the rest of her life for secondary adrenal insufficiecy will continue to make the tumor grow. It is not cancerous, but can still cause problems and pain. Also estrogen will make it grow. And a lot of time when women get pregnant it can cause it to go so fast it could burst. Her estrogen is under control with Norplant and she doesn't ever plan to have kids because of all her health issues.

We have an appointment for her to be seen on Wednesday of next week. They could have seen her tomorrow, but that doesn't leave us enough time. We'll go down the night before and spend the night. Maybe we actually will be able to have this surgery done by the end of the year. Then it will be 100% covered by insurance. Keep your fingers crossed and pray for us that this will happen.

In other news, Woman Within is having an online 50% off sale through the 24th, so I went ahead and ordered 4 sweaters that I've been waiting on for a good sale. I saved $127.50 on the sale. It came to $143.59 with sales tax and shipping. 2 of the sweaters are for me (finally getting something for myself!). WW is a plus size website and catalog that starts at size large and 12/14.

I have liked everything I have ordered from them save one, a long sleeved nightgown where the cuffs were too tight and the sleeves were too short (and I have short arms). It was supposed to be full length, but went halfway up my lower arm. It was one of those billowy nightgowns, so I ended up cutting off the sleeves and just using it as a swim suit cover up for walking from the main locker room to the pool, because I really liked the blue and green plaid.

I took off the bottom ruffle and shortened it by a foot and removed the ribbon. I turned the sleeves and extra fabric into handkerchiefs for when my nose is too sore for regular tissues. So it didn't go to waste. It is flannel and soft. It no longer looks like a nightgown at all. But like I said that was the only bad thing in years of ordering from them. I could have sent it back, but didn't want the bother. That was back when I still had access to my sewing machine.

I haven't been sleeping well the last few nights. I have dark circles again for the first time in ages. Really dark ones. Like black eyes on the third day dark. Hopefully I will sleep tonight.

I got a call from the gastro doc's office today. DD had her second MRI with a different contrast last Wednesday. The results came in on Friday. Well, they called me today and said they wanted her to see the doctor. She usually just sees the P.A. But they wanted her to see the actual doctor and they wanted her to see him tomorrow.

I am trying to not freak out. It is seriously hard to even get an appointment with just the PA, like six weeks out usually, so I was surprised they were able to do this so fast. It makes me worry that her tumor has grown. Maybe he just wants to schedule a biopsy or maybe he wants to do surgery. I don't know. She's been in a lot of pain in that area lately though.

I would just like them to take it off her liver. Preferably by the end of the year so that it is completely covered since we hit our out of pocket max back in June or thereabouts. If it is in Jan we will have to come up with $4500 for the deductible and out of pocket max. We will have about $2000 by then, unless MIL gives us more money. We would have more if it weren't for the glasses for three of us and the dental work for three members of this household who don't take care of their teeth like I do.

The new lenses for DD and myself came in today. We had problems with the coating coming off in patches, so they sent for new ones and then just popped them into our frames when we went in today to get them.

I got summoned for jury duty. This is (I think) the 20th time in 30 years. My doctor is writing an excuse and will have it for me tomorrow. I have numerous health issues that will prevent me from serving, plus I'm practically a full time caregiver for my disabled daughter and I do not need this right now when we're going through this liver tumor thing.

I wish they would quit putting me in the pool. I have known people who are in their 70's and 80's who have never once been summoned. I have always listed my illnesses and disabilities. They should keep them on file and realize I am not a good candidate. They always accept the doctor's excuse.

If I was able, I would love to serve, but as it is, it would cause so much pain to sit for that long without moving and I would have to be on painkillers and muscle relaxants, which would keep me unfocused. Not a prime jurist at all.

I went ahead and used some of my allowance that I have been saving to buy a new fitbit. It cost $108.50 with tax. I ended up getting the white one since my son has a black one. It's easier to not get them mixed up if we accidentally leave them in the bathroom after a shower that way.

I really like it so far. I especially like that it tracks the heart rate since the doctor wants me tracking my heart rate since I've had some incidents of racing heart. If I can just look down at my wrist when that happens I can know immediately what is going on.

I also like that I can read my text messages on it or get buzzed when someone is calling me. I keep the volume on my phone turned off most of the time because the ringing can sometimes trigger a migraine. I've tried a ton of ring tones and there is just something about the pitch coming out of the phone that does it. I also keep it in my purse so I wouldn't feel it vibrating if I set it to that.

It's also waterproof so when I go to the pool I can keep it on. That's what I liked about my last one. I hope this one last longer. It is better constructed.

So far I have hit my steps every day since I got it. My steps aren't super high, though, since I am disabled. But I am doing more each day and have already been able to reset my step goals once.

We have finally started working on walking at physical therapy. For the first 8 weeks it was strengthening and stability exercises. At my session on Friday we started working on walking. Since I started using the proper walking technique I am doing so much better and able to walk further without a cane. My goal for this week was to walk to the end of the block and back, which is actually a typical block since our block is two blocks long.

Plus I got my new shoes and they are really nice. They cost $80, but they are 4E in width and for the first time in my life my feet don't feel jammed into the toe box. They also have a high front of the foot and Velcro(TM) fasteners which are easier on my arthritic hands.

When I get orthotics they will fit in them, too. I am hoping to be able to get them made this month. They cost $400, though, and insurance does not cover them at all. My PT, my Chiropractor, and my Podiatrist think it will make walking easier and help me to not have so much pain because I'll be in better alignment. I have been thinking about it for a couple of years now and am ready to get them.

I have a PT appointment tomorrow and I hope I will show a lot of improvement. I have been consistent with doing my exercises and I think it shows.

It rained all day so I didn't get any gardening done. Actually, I didn't get much of anything done. I did take DD to the doctor and DS to the gym and I read a lot. This is the first time since I got so sick that I have been up to reading for a decent length of time.

My new regimen of eye vitamins seems to be working quite well. I take 5000 IU of vitamin A, 450 mg of vitamin E, 200 mcg of selenium, and Bilberry Ginkgo Lutein complex. The spots had been getting darker again for a while, but they are back to a light yellow/brown and are far less noticeable. I don't know that they are smaller, but when they aren't black they don't seem to interfere so much with things like reading.

I took my third Enbrel shot tonight. Again it seemed like things weren't as good after the first five days, but that could just be soreness from gardening. The brain fog seems to be gone, though. I have more energy, but not as much as I'd like to have. I feel capable of doing things, though. I have to remember to call the mail order pharmacy for the next set of shots in about 5 days. I found out my co-pay for the drug this month is $30. Not bad for a wildly expensive drug.

I really need to schedule a hair cut. My hair is back to length it was when it was at its longest. It just grows so fast. But it is getting caught in my armpits when I raise my arms and then bring them back down and it pulls my hair and hurts. And DH sometimes leans on it and that is not good, either. I am thinking of cutting off about a foot and getting to one inch past my chin. Which will really be at my chin because it bounces up with my loose curls. I will basically be getting it cut to the length of my bangs by doing that. I have money in the personal care envelope, so it is just a question of making the appointment and doing it.

I go to the doctor tomorrow. I think I still have a sinus infection going on. The pressure is out of my ears, but I still have a pretty bad headache above my eyebrows and the back teeth and jaw hurt, which is also a sign of sinus infection. I think the ones in my face are also in play, but not as badly. I just want to get this thing cleared up so I can maybe enjoy the spring.

I spent $1.09 on a candy bar today, but that came out of my allowance envelope. I have been trying to avoid having sweets in the house, but clearly today was not going to be one of those days. I kind of felt like a PMSing teenager needing chocolate. Sometimes I swear I'm menopausal even though I had a hysterectomy in 2003 and went through all that stuff when I was 33 to 35. I wonder if that is even possible because if I were normal, this would be the age I would have started peri-menopause. Like I need that on top of all my auto-immune issues.

I tried the cheese wrap today. It is called Folio's and it was the Parmesan one. Apparently they make a cheddar cheese one, too. I did find out some more info about them. They are only available in west coast Costco's, but they are available nationwide at Aldi's, though not really because Aldi is not a nationwide chain.

I used one wrap, 2 slices of deli turkey, some rather hot stone ground mustard, and some cucumber slices. It was great and surprisingly filling for its size. I imagine after swimming I would need two, but on a normal day one is fine for lunch. I did add more cucumber slices on the side, though.

I have found some youtube videos on how to make your own Folio's, which I may try, as homemade would be cheaper, but if it is too fiddly to make, I don't mind shelling out for these, because they are good and it makes my life a little easier.

DH had to pick up some pure maple syrup at Costco last night, so that cost $11.59. That seems to have gone down a good bit since the last time we bought syrup. I think it was around $15 last time, so that was a nice surprise.

The last two days were kind of painful. I think it was the storm. I am sensitive to changes in barometric pressure. I swell up when rainstorms come in. I also get headaches. It's weird. But the sun is back out today and also last night was my second shot of Enbrel and my joints are feeling better again, except my left hip, which is out and my chiropractor is on vacation. He won't be back until the 10th.

It is possible that I may be someone who has to take two shots of Enbrel a week, but I imagine it is too soon to tell. But the joint flare could also have been the medicine wearing off. I don't know. It's too soon to tell on that as well. No nausea or vomiting with this second shot, but I took some Zantac last night to try to prevent it, and it seems like it did.

Tomorrow we have another rain storm coming in, so if my joints hurt again, then I'll assume it was the pressure and not the medicine wearing off, since I just took the shot.

I have been maintaining my weight loss, but have not been very good at losing anymore. I haven't really been trying this week, but I need to get my act together, because I still have a lot to lose. We are going to get our gym membership signed up for this weekend and I can get back in the pool again. I am going to take it easy and only walk in the pool to start, not try to swim laps or use the water weights. I need to build up my stamina. Then maybe after a week or so, I might take a class.

They have Aqua Zumba one day a week and water aerobics the rest of the week days and Saturday. I will start with Aqua Zumba as it is easier on the joints and more fun. I will have to get up earlier for the water aerobics if I decide to start that, but Aqua Zumba is at 10:30. They do have two night time water aerobics classes if I just can't get up early enough. But they are at 6 p.m. and I imagine quite crowded at that time of day.

DS will be using the work out machines and weights while I am in the pool. He isn't really keen on water aerobics, though he did enjoy them when he was younger. I think he is self-conscious to be in a pool full of women, even if most of them are middle aged to old age.

I don't really know if DH or DD will use the membership or not. DD says she will to use the pool, but she is never able to get up, so I don't see it really happening unless she changes her sleeping schedule. I'm not going to drive there twice a day. It is a bad traffic situation later in the day and hard to get in and out.

I think I am going to have to accelerate savings for the computer fund. My computer keeps restarting itself. Every day, sometimes twice a day and it is getting super annoying. It keeps saying my computer has an error and has to shut down. Ugh. I am going to try a few things to see if I can't find the error, but it may not be salvageable.

This computer has quite a few things wrong with it that they never seemed to be able to fix 100% and now it no longer has a service contract, so I just can't see throwing money at it when I can throw money at a new one. I am not sure I will get a laptop this time, though. I think I may just get a desktop instead. We'll see. With my current phone, I don't really need a laptop to take with me anymore. I only write at home these days.

Although I do like taking the laptop into the bathroom while I am taking a long bath and playing a movie, so there's that. I guess I'll figure that out once I have the money saved up. I want to save instead of 18 months same as cash, but will do that if this thing goes belly up before the money is ready.

I need to go to Winco and pick up a bag of oats for the rabbits. The feed stores have been getting corn in their oats the last several times we have gotten them and the rabbits can't eat corn. It has been a real pain in the butt to deal with. So I am hoping that oats from Winco will be clean. Since they are for human consumption there is better quality control. It's a little more expensive this way, but I'd rather that than risk killing my rabbits.

I've been on the Enbrel for a few days now and I continue to improve. The swelling in my legs has gone way down. It used to be a constant. A large part of my pain is gone throughout the day, though by evening I do have some that comes back. It is not as bad as before, though. I get a little queasy in the mornings, but haven't thrown up after the first morning post injection, and it seems a little less each day. I am starting to feel like a semi-functional human being.

I still haven't quite shaken this cold, but I am getting there. I'm able to do all my indoor chores again. I haven't tried to do my outdoor stuff yet. Seasonal allergies have piled on top of it, though, so there is just a lot of nose blowing going on still. I didn't sleep very well last night or the night before, which doesn't help with getting better. I keep waking up too early. I've tried going to bed earlier to compensate, but then I just lay there not sleeping until the normal time I fall asleep. Very exhausting.

I am looking forward to payday as we will be able to make some more progress on the loan. I'm not sure I'll be able to pay as much as I was hoping. We've got a couple things that have come up that need to be taken care of. Isn't that always the way? I'll still be able to make an extra payment, though.

I had to spend DH for milk and ice. He spent $7.99. Yes, I know I can make my own ice. I don't. It's one of the luxuries I allow, since I have trouble cracking ice cube trays with my RA.

Speaking of my RA, I started Enbrel last night. It's a pen type injector. I was really nervous, but it was simple. It hurt a little when the needle went in, but far less than a regular shot. The medicine itself did not hurt.

It's not supposed to take effect for a month, but some people have had it take effect immediately. I think I am one of those people, because I slept all night on one side. Usually I wake up a couple times a night to switch sides because of the pain. I'm not saying I am pain free, because I am not, but it was easier to get out of bed this morning than any time in recent memory.

I did have one side effect, though. I threw up this morning out of nowhere. I was perfectly fine, then ate a string cheese, and 30 seconds later got all the signs I was going to throw up and then did. There was a lot of bile, but fortunately I had drunk a lot of water, so it wasn't as nasty as it could have been. Vomiting is a side effect of the drug, as it has been with almost every RA drug I have tried. However, I've been fine the rest of the day.

Also I had more energy today than I have had in ages. I am still a little sick, but I had enough energy to do two loads of dishes and 4 loads of laundry. I have not had the energy to do that since I was on steroids for that really bad sinus infection. I also made dinner, including slicing an onion. Some days I can't cut things up. This was not one of those days.

So I am cautiously optimistic. We will see. Even if I still hurt, if I am not tired all the time that will be a drastic improvement. I am used to living in pain. Having the energy to get through a day is worth more to me than being pain free. But hopefully that pain will get better each day with this drug. And I won't get any of the scary bad side effects.

I was just given several t-shirts, tank tops, and one long-sleeved shirt by someone who has gotten too heavy for them. They are younger than me, so I call them hand me ups instead of hand me downs. I was just saying I needed to buy a couple of t-shirts to get me through until I am in the next size down, but now I don't have to. They are all in great condition, too. I like it when life works out like that.

The only one that might not work for me is a yellow tank top. I don't wear yellow well. But I guess I can use it around the house or in the garden where I won't be out in public. Now all I need to buy for myself is a cardigan and some socks.

So far I have kept the weight off that I lost while super sick. I am still sick, can't seem to shake the runny nose and throat cough from post nasal drip, but I am pretty functional. I am going to go ahead and go to the doctor this week, though. I think my flu may have turned into a sinus infection and that is why I can't seem to beat it.

My legs swelled up after my second day of grocery shopping, but what is really great is that they did not swell like they used to when I was eating the food with the nitrites and nitrates. Of course I have also lost nearly 18 pounds, so maybe it was all in my calves? No, most of it is in my stomach that I have lost, but maybe it still helps me to swell up less. I never felt like my skin was going to burst like a sausage. My ankle and knee joints hurt all day yesterday, but are somewhat better today.

I get my first enbrel delivery on Tuesday. I am hoping that will make a big improvement in my RA symptoms. It takes about a month of use to see a difference, though, they say. I'll be taking it in addition to my hydroxychloroquine. I'm not thrilled about the long term possible side effects of enbrel, but if it does help with the pain and inflammation, then I guess I can worry about those later. I'm 49. It's not like I'm going to live forever anyway.

The last time I posted was on the 6th. 13 days later and I am still sick, though on the upswing. This thing has kicked my butt so hard. I've lost 15 pounds on the too sick to eat diet. The first week I was sleeping about 22 hours a day. Then days 8 through 10 I was sleeping about 18 hours a day. Now I am sleeping about 15 hours a day. I've been able to sit upright for a couple hours a day for the last 3 days. I still have a cough, but it is in my throat and that stupid runny nose this whole time.

I am trying to eat now, but it is still a lot of work. I am trying to get in at least one meal a day, but I am just not that interested in food. Eating should not be such a chore. This illness is worse than the one in October that threw me down so hard. I do see the light at the end of the tunnel, but I wish I wasn't just so exhausted. It's viral so there is nothing I can do but treat the symptoms.

It has been really nice outside the last two days, in the high 60's, and I would love to be able to get out into the garden, but even folding a basket of towels winds me. Getting my hands in the dirt always makes me feel recharged, but I think I have to have at least a quarter of a charge in the first place, so it will have to wait.

It is hard to believe a little over a week ago we had snow. There is pollen all over the car windows. The purple crocus have been up for about four days and today I saw my first yellow hyacinth. I see the tulip leaves pushing their way out of the soil, too.

I managed to get all the bills paid two days ago when I could think enough to write out checks. The day before that DH took me to the grocery store, but I had to use my inhaler halfway through. Normally I wouldn't have gone, but we were out of so many things and DH doesn't shop well on his own. He comes back with things we don't need and that are junky. We only did the one store, because I had no stamina.

We have been getting a lot of take out. I guess it was good that we had the tax return to spend. I just haven't been able to cook much at all. I hate that we spent all that money on it, but so be it. Sometimes you have to do what you have to do.

What has been really nice during this time is that I have not had an RA flare up. Usually when I get sick I have one, but I guess my body decided it was only going to deal with one thing at a time this time around. It may be just a coincidence, but I also stopped eating a food that had nitrites and nitrates in it when I got sick and haven't had swelling symptoms at all since. I am too afraid to try that food and test it out, because I really don't want to swell and be in pain. It's not worth the chance.

So that's why I've been so quiet. I really wasn't on the computer much, other than I had audio stories playing when I was awake. I was too sick to watch anything and too sick to read, but listening to stories I could handle. I do bless all the people on youtube who tell stories, especially the ones who do voices and add music and make it interesting. Hopefully as I get stronger, I can get back to my normal life again.

I am still not back to normal after our trip to Seattle for DD's operation. It has been a week since we got back. I am still in pain, still have a massive amount of inflammation, am dragging like a person who never gets any sleep even though I am getting sleep, and am stuffy. I hate it when my RA flares up like this. I've made the decision to not go with DH and DD when they go for the surgery follow-up appointment. My body just cannot take these long car trips, although it may have been the hotel bed that made it the worst.

I don't know if they will have the biopsy results then or not, but I hope they will. Except for that one spot, things looked good. If there is nothing wrong from the biopsy, I guess we are back to square one. I want to get her tested for Von Willebrand disease. This is secondary to whatever else is going on, but she is getting daily nosebleeds two to three times a day that take a long time to stop and they are coming from high up in the nasal cavity. Along with the other bleeding problems she has had in the past, it would make sense if she has this, including when there was blood in the bladder for no discernable cause. We had her tested for a couple of other bleeding disorders before, but not this one.

So just as a recap, what's been diagnosed so far:

Hypothyroidism
Secondary Adrenal Insufficiency
Gasteropaeresis
Granuloma Anularae (autoimmune)
Some unspecified autoimmune disease they haven't tracked down yet (not RA, MS, or Lupus)
Neuropathy
Migraines

I am suspicious that she may have fibromyalgia, although I kind of feel like that is what they call something when they can't find out what it really is, because she has all the symptoms of it. And from what I can see, the treatments tend to be pot, muscle relaxants, and anti-depressants. She can't take anti-depressants because of the gasteroparesis (they make her puke and flare constantly) and she doesn't want to take pot, which we are legal for here in my state, but I don't want her taking it either. She's already on a muscle relaxant and it doesn't do much.

She does have autoimmune markers in her lab work, they just don't know what it is. And it is not the granuloma anularae causing those markers. It's probably something impossibly rare.

She also, of course, has never been the same since the skull fracture and broken tailbone when she fell in the creek when she was 16. Lots of brain fog and issues with reading and doing math even six years later. I still marvel at the fact that she graduated high school.

I just want us to find a way to make her pain better, so that she can function with some quality of life. But for that to happen it seems like we have to find the thing they can't seem to find.

At least since the gasteroparesis has been more and more under control, she is more positive and happy. I guess not puking on a daily basis will do that to a person. Also her hair has stopped falling out since getting that under control, so there's that. And she's no longer anemic, though she is only just above the line.

As for me, I'm still waiting on the Enbrel. The doctor and the pharmacy need to get stuff straightened out, but I have the co-pay card, so at least when they do, it will go forward. If I haven't heard anything by Monday I will call the doctor's office and try to push things along.

I also want the doctor to do a blood test for my cortisol levels and to check my thyroid. I think something is going on there, especially with cortisol. I felt so much better on the steroids, like a normal human. Of course, I could hardly sleep, but I was amped up enough it didn't matter. My reaction to them is what makes me think my cortisone is messed up. While I'm at it, I should schedule a mammogram, too. Maybe in another week I'll feel good enough to get on that.

All the pre-op stuff went well. It was an exhausting day. Getting out of Seattle is always the worst. They have these lanes that keep turning into bus only lanes and then back into all traffic and then back into bus only, like every other block. It is such a nightmare, especially when you are trying to make right hand turns, and then just for fun they will throw one in on the left hand lane. Practically all the streets are one way, too, which does not help anything.

And the pedestrians are nuts. Forget the fact that there are crosswalks at every corner and some in between. Heaven forbid they have to walk fifteen feet to cross at one when they can just dart out into traffic and disrupt the 15 seconds you have to try to advance half a block because they don't want to wait their turn. Ugh! I think this is the first time ever we didn't have to deal with any cyclists, though.

The anesthetist resident we met with was so drop dead gorgeous we thought we'd walked into a hospital TV drama. He was half Vietnamese/half Caucasian and had the most beautiful skin, just flawless and incredible bone structure. He kind of reminded me of a cross of Glenn from the Walking Dead and Eugene from the Try Guys on YouTube, neither of which are Vietnamese, but it was the bone structure. But his voice was a dead ringer for Mark-Paul Gosselar. It was the weirdest thing. He was very good at his job, very thorough in going over things and answering questions. He asked a lot of questions about DD's secondary adrenal insufficiency. It went very well.

Now we just have to wait for the 7th to get here. We are going to go down the night before and stay at the hotel that is attached to the hospital. That way we don't have to leave until around seven at night and we won't have to deal with any traffic and then we will have the hotel for a second night so that if DD doesn't feel like traveling the day of surgery we can wait until the next day and pick a good time to try to get out of Dodge.

If she does feel like leaving then we can still wait until evening and just check out early. That gives her a while to rest after the surgery. I have a feeling we'll just stay over that second night, though. Her surgery is currently scheduled in the early afternoon, but it may get moved up. We just don't know and won't until the day before.

We stopped at Red Lobster for dinner and spent far too much money, but it was planned for. I won't be able to go out for my birthday in February because it is too close to DD's surgery and I won't want to leave her alone, so this kind of counted as that for me at least, even though I didn't have cake. They had this weird cauliflower gratin thing that if you like both cauliflower and aged cheese is decent, but it needs some kind of spice as it was still a little bland.

They did give us a free dessert, which DD ate. It was because DH ordered a 12 oz New York strip steak and they brought him a 7 ounce sirloin. They did fix it. We didn't really care, mistakes happen, and the night was a bit of a comedy of errors, but no biggie. The waitress was great if a little scattered, the restaurant was pretty empty, and the music made you want to dance in your seat. All in all it made up for Seattle traffic. Plus their potato bacon soup is one of the best on the planet and when you start your meal with that it's all good.

I am starting to feel a little difference on the prednisone, quite a bit more energy, which I am taking advantage of, but I made the mistake of eating takeout last night and woke up with a very sore throat. I think someone has changed their recipes and added MSG or soy. Another restaurant to tick off the list of safe restaurants. And yes, I know I was trying to get through the whole month with no eating out. I made it three weeks.

Today I started back on my diet. I bought 2 rotisserie chickens and roast beef slices at Whole Foods to help me with that. The only seasonings they use are salt and pepper, and the beef is a real roast they make onsite, so no fillers. I also got some zucchini. I am going to use my veggie sheet cutter and make some zucchini, roast beef, and cheese roll ups for lunches.

I also got some uncured soppressata and some white cheddar and some sharp cheddar, some soups, and sushi rice (but that was for my daughter, I seldom eat rice). I ended up spending a little over $71.

I have really noticed a change in how my body feels since I quit buying only organic or pasture-raised meat. I was trying to save money to use on paying off debt, but I am not sure it has been worth the trade off to my health. I don't know if anyone else would notice it, but with my auto-immune disease, I think it does make a difference to avoid the chemical fertilizers and GMO fed meat.

I don't think I've been in Whole Foods since we started on Dave Ramsey in April, not that I went there often, anyway. I usually went to Trader Joe's, because it is far less expensive. April is when I started buying conventionally raised meat, too. Now that we don't have to worry so much about medical, since that account is fully funded, I think I am going to raise my grocery budget back to $1000 so we can have organic meat and be fully organic on produce again. That will have us adding $600 a month to the medical account instead of $800. In the long run it is an investment back into my health, which does affect medical.

I have an appointment with the rheumatologist tomorrow. I did finally get the approval for enbrel from my insurance company, but nowhere near enough time for her to see how I am doing on it, because I haven't started it yet. That was the original plan before my insurance company got all stupid. That's going to be fun to explain.

I took DD to the sleep doctor today. Because of the nerve pain medicine, she may not need as high a dose of one of her sleep drugs, so she is going to try to wean down to a half dose of it and see how she does, and if it is okay, then wean off it. Since the nerve pain drug has a sedating effect, the other may no longer be necessary. She'll still have to stay on the other one, though.

I was able to make a double batch of breakfast burritos (2 lbs chicken sausage, 24 eggs, 24 tortillas, 2 cups of shredded Mexi-blend cheese) with the help of my son. I taught him how to do the cooking part. He's helped with the assembly since I first started making them. It will be good for the men folk to have those ready in the freezer for breakfasts again.

I also got about half of the counter on the right side of the sink cleared off and deep cleaned. The crockpots are now being stored on the upper shelf of a lower cabinet next to the sink instead of on the counter. I will be able to put my Kitchen Aid stand mixer back over there now. The other half is mostly clutter from plastic containers that have not been stacked together and put away yet. I did get all the lids organized last night. The Costco protein drink boxes (DS drinks these) are the perfect size for that so I used two of them to organize my lids and measuring cups into. I may end up covering them in contact paper to pretty them up, though.

I saw an idea on youtube on using a shallow drawer to store all your spices instead of on a shelf. We use a lot of spices and I was always having to mix the around to find them. Now they are all laid out flat in the drawer with their labels upright and the ones I use the least towards the back. It was big enough to do three full rows, and then a row in the other direction along the ends. I can already see how much it is going to help.

I'd like to eventually just have the mixer, the Keurig, the lid boxes, the knife block and the toaster on that counter. I just have to reorganize the two big drawers and then stack the containers inside each other like they should be. And if I move the knife block over there, I then have room to put the new blender on the left-hand side of the sink. It is too tall to fit under the counter, but there is just enough space for it to fit in the open area next to the sink.

So, yeah, the prednisone is definitely working.

I have really not been the same since getting so sick at the start of September. So I went back to the doctor today (had to see the on call NP) and I still have a pretty ferocious sinus infection. So she prescribed a double z-pack, plus prednisone. It's been over a year since I've been on steroids. I start them in the morning and I hope I'll get some energy back. It usually takes 24 hours. I wish I could start them tonight. Anyway, it was $13.64 for the meds and it'll be full cost for the visit once it clears insurance because of the deductible. I don't remember how much that is, but it is over $100.

I stopped at the grocery store after that. I picked up enough oranges to get me to payday, along with green onions, two tomatoes, 1 onion, some cilantro, and a lime. I spent under $20, but can't find the receipt. I'm making pico de gallo the day before payday and I wanted two days for the tomatoes to finish ripening. The green onions are for making egg flower soup, which is planned for tomorrow's lunch. I have to make chicken and bone broth in the morning so it is the perfect day to make soup. I will be making it with duck eggs which increases the protein.

I miss the days of it being my own duck eggs, but at least I have a source to buy them from, and I have to admit I do not miss doing the chores associated with keeping ducks, turkeys, and chickens. Or the smell. Well, that was mostly the chickens. I save the duck eggs for baking or egg flower soup, though, as they are $4.59 a half dozen at this time of year. During the regular laying season I can get them for $5 a dozen. Both are pasture raised so they have big orange yolks instead of faded out yellow ones. And they taste a lot better, so they are worth the expense, so long as I don't go overboard on buying them.

Anyway, that is the expenses for the day.

I heard back from the scheduler and DD's surgery has now been scheduled for February 7th. I didn't think we'd get in this soon, but I am glad we did. There is also a pre-op appointment on the 30th of January and I post-op appointment on the 22nd of February. So that will mean 3 trips to Seattle in 4 weeks. Ugh. But it will be worth it. I have to double our gas budget for that. We usually spend about $100 a month on gas, but I'll budget $200. That means not contributing to the computer replacement fund this month, but no one needs a new computer at the moment, so no biggie.

DH will have to take 3 days off work. He can work 4 10 hour days instead of 5 8 hour days, though. Or he can take some paid vacation time. It's not like we can afford to go on a vacation and we can't leave the rabbits even if we could, and they don't just allow him to work and take the vacation money, so the money and time off might as well be used for something like this.

I wish I could do the drive on my own, but my RA starts acting up after about 30 minutes of non-stop driving and I start to worry about my reflexes on longer trips, especially on a freeway I am not used to driving on with a much higher traffic volume and inhabitants that think turn signals are optional for lane changes. I avoid driving on the freeway most of the time even in my own city because I just don't like it.

I am hoping we will get an estimate on how much the surgery will cost. I am sure we will have to put down a down payment, too. That seems to be the way it goes these days. But we have $5K in the bank for this so we should be fine. Our portion should be less than that. But honestly, as much as I hate being debt, this is a surgery we would go into debt for, and I don't say that lightly.

So the commenting feature is acting up again, claiming I'm not logged in when I am. Will they ever get this thing permanently fixed? I've gotten to the point where I don't even feel like complaining anymore, because they'll make it work for a week, but it never works for good. The emojis haven't worked for what, two years now? *sighs* I know it is little things, but it is really making it user unfriendly.

My goal to blog more consistently kind of went by the wayside. We cleaned rabbit cages this weekend with our new clearance pressure washer, swept out the rabbit shed, including all of the cobwebs on the ceiling and put away the summer fans which had not been stored properly yet, and I wore myself out so bad that the last thing I felt like doing is blogging. I did, however, finish watching season 2 of Westworld.

The pressure washer was a $200 machine that we got for $70 because of the season, I'm sure. It is an ecofriendly one, too, that doesn't use as much water, but is very forceful. It made the chore much easier and faster, but it still took several hours because some of the trays had to be fired. Also having only 8 rabbits now makes it easier to get through all the cages quickly.

I haven't made up a meal plan for the second half of the month yet, since I was basically using up leftovers the past couple of days. We had some shredded chicken to get through so I made quesadillas. I also made some Mexican rice which had leftovers so DH and DS will have some for their next couple days of lunches. Both are big rice eaters. I used some of my home canned salsa in it. It's from 2015, my huge tomato year. The day before that we had leftover pork stew. Tomorrow I will sit down and figure out a meal plan for the remainder of the month.

I have to be more careful about how much work I do around the farm. I still haven't completely shaken my cough and despite it being fairly warm at 45 degrees on Saturday and Sunday, it was still a little colder than I probably should have been out in. But the work goes faster with three people than two. I spent most of Monday and Tuesday in bed, though. Partly the cough, but mostly the rheumatoid arthritis flaring up after doing so much work.

I have misplaced the rabbits' nail clippers so will have to pick up a new pair as they are all due for a clipping. I hate having to go to the pet store, but the farmer's co-op doesn't sell the right kind of clippers, the kind that encircle the whole nail. I think I need to get a new brush, too. The last one broke. The don't need to be brushed generally, but a couple of them are blowing their coats already. Makes me think we might not get a super cold winter this year. So when they do that it helps to brush out all the old fur. Plus they really seem to enjoy the extra attention. So a couple of small expenses there, but I doubt I will spend more than $15 there. DH needs to pick up a bale of hay this weekend, too.

I need to get a new charger for my phone as well. The one I have only works if it is propped at an angle. So while I can get it to charge, sometimes I forget to prop it and then go to grab my phone and it is dead. I don't know how much that will cost, but I have over $100 in my allowance envelope, since I rarely spend it. It won't be near that, I know, but I am prepared regardless.

I got my medical checkbook balanced. Found a mistake that made the balance $365 off. It was $182.50 that I'd added instead of subtracted, thereby doubling to $365. But that account has over $5000 in it so no worries.

I have entered in all the medical bills for each month. Now I need to add them all up and see the total to see if we can deduct for them. I know some stuff has changed this year. I'll get that done tomorrow and get the numbers for that and our tithe to DH. I'd like to get our taxes done ASAP. With identity theft in our lives, the sooner the better. Of course, I don't know if the IRS will be processing or not due to the shutdown. The last time there was a shutdown at this time of year, we sent it in early and still got it back fairly quickly, but that one was shorter than this one, so who knows?

I called VM today as I still haven't heard anything about DD's surgery being scheduled. I know there was a delay for the holidays, but it has been nearly a month. I left a message with the scheduler, so hopefully I will hear back from her tomorrow. DD has dropped 75 pounds in that amount of time. Pretty much all of it retained water. The new meds are working very well in that respect. She has cheekbones again. No guarantee it won't come back, but for now it is a major relief for her body.

Okay, I think that catches me up.

I took DD to the dentist today. She had to get the webbing clipped on that part of your mouth where the lower lip connects to the gum. It was starting to pull down the gum line on her two lower front teeth too far. It could have eventually exposed the roots of the teeth and she might have lost them due to them not being stable anymore. It was just a quick snip and a couple of stitches.

I am not sure how much it will cost us. Probably $50 for the co-pay, but they didn't collect anything while we were there. I wish our previous dentist had brought this up before. The new guy seems a little more on the ball. I mean, when he pointed it out to me, you could really see where the damage was being caused, it is an obvious thing that a dentist should have noticed before this. Unless maybe it wasn't as obvious and just got really bad in the last year.

I did actually break my no take out rule. I bought my daughter two milkshakes because she wasn't allowed to eat solids for the rest of the day and she wanted something cold to numb it. I really didn't want to go to the grocery store because it was raining hard, so we went to DQ.

I also spent $27.33 on prescriptions today, including a numbing mouth wash from the dentist for her. That came out of the medical account, though.

We still have not heard anything from the gyno's surgery scheduler. Hopefully we will hear from them this week. I know the doctor wasn't in her office for the last two weeks, but everyone was supposed to be back on Monday. The insurance company was probably pretty much closed down between Christmas and New Year's as well. If I don't hear from them by Friday I'll give a call on Monday.

I am still waiting to get a bill from DS's sleep study. It looks like it will be around $400 based on what the insurance company sent me for what they covered, but I'd like to get the bill so that it can be taken care of. The insurance statement only came on Monday. Everyone is behind because of the holidays, I think.

Mom called her insurance company today and has a claim number we can use. We will take the truck in soon to get an estimate and then schedule repairs. Fortunately, the damage is just cosmetic except for the bumper and while the license plate is dented in badly, it is still readable. We will leave that until we get new plates. Washington state requires new license plate numbers every 5 years (and they wonder why we are running out of numbers on our plates. They used to just be six digits and now they are seven because of this rule. Well, actually, we better make sure a new plate would even be attachable. I'll mention that to DH so he can mention it to the repair guy.

I did change my meal plan tonight since DD can't eat solids, to penné pasta with chicken sausage, since she can't eat the chicken sausage or tomatoes. I have a ton of sausage in the freezer that used to be something she could eat, but she can't anymore.

Oh, Alliecat79, this was a super easy Instant Pot meal. Just take two pints of diced tomatoes with their juice and add them to your pot, then dump in a box of penné pasta, then put in two jars of spaghetti sauce covering the pasta. Put an inch of water in each jar, put the lid on, shake up, and then dump the contents into the pot. Between that and the tomato juice there is enough liquid to make the steam so adding more is not necessary. Cut up some sausage links and put on top. On the manual setting, set the time for 12 minutes. Do a quick release when done and then stir it all up. That's it. (Sometimes I throw in a couple handfuls of frozen zucchini, too). Oh, and make sure you spray the liner pot with olive oil before you start. It makes clean up much easier.

DD is doing much better now. Thanks for all the supportive comments. They gave her IV fluids because she was dehydrated and the doctor agreed that it was a gasteroparesis flare up that caused an adrenal crisis due to not keeping down her meds. So we did everything right. She was there for a few hours, but her blood work came back okay on the cortisol levels, the shot did what it was supposed to do. Her iron levels are improving now that she has been able to eat very lean beef again, so we got confirmation of that. They did do the dumb pregnancy test despite her not needing one.

My birthday present from MIL has arrived yesterday, though my birthday is not until February 12th. She said I did not need to wait to use it if I didn't want to. I got a KitchenAid hand mixer in ice blue, which is really a minty green/blue color. They didn't have it in teal, which seems to be a discontinued color for KitchenAid. It is the color of my stand mixer, my toaster (Oster), and my Keurig. So I went with a color that will compliment the teal.

Today I ordered the birthday present that comes from DH (but will also be using some of the money I got from MIL for Christmas). It is a Dash 1400 watt blender in Aqua, which is also really a minty green/blue color in reality. Unfortunately KitchenAid does not have a blender in ice blue, so this was the closest I could come. I think this is a better blender anyway, more on par with a Vitamix, only slightly better. It was on a very good deal today and what I have been considering purchasing for a good long while. So, no, it's not an electric apple flinger situation.

We have been getting by with a cheap Ninja blender for the last couple of years, but it is one of those ones that you have to hold down to make it blend the entire time you blend it. And it is not that great with frozen things or ice. With this DD should be able to eat vegetables and fruits again that are not acidic. They have to be very pureéd or liquified so there are no long fibers that she can't digest.

You can also make soup in it as it has a soup function. This way she can get back to some healthier food options. And also I can make more low carb veggie soups. And we might be able to do a smooth pureé cauliflower and see if she can tolerate cauliflower that way. We've had to avoid the brassicas, but just maybe she could eat them this way.

I have been slowly investing in quality kitchen appliances the last few years after having cheap ones that break easily and have to be replaced for most of my marriage. I use them all the time, too, so it is nice to have dependable ones. It's not like I really need anything else anyway and cooking and baking make me happy so this has been working by having them be my gifts. I don't have to come up with unscheduled money for them, but I still get to add to my needed (and wanted) appliances/gadgets collection.

I am glad I took my time with these purchases and was able to wait until they came in the colors I liked and were good, high quality items that will last me for years.

DD's in stage 2 of an adrenal crisis. I had to give her a shot of cortisol because she couldn't keep the pills down for 24 hours and then DH took her to the ER because she has to be monitored for a while to make sure that she comes out of the adrenal crisis and that the cortisol doesn't send anything into overdrive (sort of like adrenaline would).

This is the first time I have given a shot to a human. It wasn't hard, but it was weird. I've only ever given them to rabbits when the herd needed Ivermectin and that is an under the skin shot, not a muscle shot. This was a muscle shot. I need to get used to it, though.

Before she left for the hospital I had her renew her shot prescription so we can get a replacement into her emergency med kit as soon as possible.

At least we have the money in the medical account to cover this when it comes due. That is a lot less stress on us than all of last year. I'll keep adding to the account, too. I had thought about maybe cutting my contributions since it is funded, but I think I'll continue on for a while. If it turns out we don't need it I will use it for debt payment, but for the time being it can just go into the medical account, at least until after her surgery (assuming the insurance company approves it). I'll stress less that way.

This visit will be the first thing on her deductible this year. It should just be around $753, since there won't be any need for tests, just monitoring. That will get her 3/4 of the way through her deductible. I hope they don't make her take a pregnancy test. They do for almost every visit, but since this one shouldn't involve radiation or narcotics in any way and we know what is going on, they don't need to.

They probably will, though, even though this should not be a diagnostic visit at all. Just another unnecessary expense for celibate women. They don't believe her when she says there is no chance. They tried to give me a pregnancy test when I went in pregnant with DS for the gash in my knee that I needed stitches for and they tried to do one after my hysterectomy. I pitched fits both times. I understand why they do it, but she's been too sick for the past 8 years to even go on a date, so it feels ridiculous. It costs somewhere in the $80 ballpark, so it just annoys me. Not like I can do anything about it, though.

Anyway, hopefully everything will be just fine. This is the first adrenal crisis she's had since being put on the cortisol. I am just glad that DH was available to take her. I am still a little under the weather, though worlds better, and I get sick every time I go to the hospital, plus the waiting room chairs and the in room chairs screw up my hips and tailbone for days afterwards. DH keeps me updated with texts so I have almost a play by play of anything going on without having to expose myself to the flu or the plague or whatever version of the creeping crud is going around town.

They were having a 20% off plus free shipping deal on Vitamin Shoppe today so I went ahead and reordered my vitamins. We were out of Vitamin D (without soy) almost and we take a lot during the winter months here due to SADS. I ordered 6 bottles of it, 2 bottles of Vitamin A (without soy), 2 bottles of fish oil (that does not have polysorbate-80 in it), and a big bottle of Vitamin C (without soy). I spent $123.08 after the discount was applied. I should be set for some time on vitamins.

I started work on the novel again. I wrote about 1008 words and I plan on getting back to it when I finish posting here. I am going to try to post every day this month and I am running out of today, so thought I'd hop on and do this quick.

Still holding strong on cooking from the meal plan and not eating out.

I worked on decluttering my room a bit today. I am taking it one section at a time. I am overcoming years of packrat tendencies, but sometimes it is slow going. I am just sick of living a cluttered existence, so one of my goals for 2019 is to put an end to that. We have been working towards it for a while now.

DS will be getting some more cooking lessons this week and next. He'll be learning how to make the tater tot casserole, homemade pizza from scratch, pork carnitas, chicken shawarma and homemade pita bread, and the sausage/bell peppers/onions stir-fry dish. He is really enjoying the cooking lessons and was bummed that we had to stop in December due to my illness.

I think that about covers it.

MIL is going to be giving us $6000 before the end of the year. I am going to put it into the medical account so that we will have the money to pay for DD's surgery. It will be nice to start the year without having to worry about having to scrape up money for the deductible and out of pocket max.

I will continue to deposit money into the account each payday as well, but with this money, I don't have to worry quite so much that we will have enough in there to meet our needs. We will.

Maybe DH will get that raise that his boss is trying to get for him. I know it is unlikely, but it would be wonderful if it happened. He has made a very big, positive impression at work, gone above and beyond the call of duty, and saved a project that no one thought could get done on time, and his boss would really like his pay to reflect that. He has worked there a year now, but only 6 months as permanent so it still may just be too soon. But I can hope.

I would have updated yesterday, but with the violence of the windstorm here yesterday, we were having power surges and so I shut down the computers and internet box for most of the day. We didn't lose power ourselves, but my MIL did and had to spend the night in a hotel. She has it back today, though. The damage is pretty bad in places.

I am really glad we zip-tied and used rope to secure our Christmas standees to the deck or we would have lost them all. The zip-tied ones stayed in place. The one tied on with rope was blown off the deck, but was still attached to it. We are in for more of the same in the next couple of days, but today has been still. At least it wasn't like the tornado that touched down in Port Orchard, but there for a while, I wasn't sure.

I am just glad that DD's appointment at Virginia Mason was the day before and we weren't driving in that stuff. The appointment went really well. The doctor prescribed a nerve pain drug for her that is working very well already. She also, and this is what I still have a hard time believing, agreed to do a laparoscopic surgery on DD. We have been trying to get a gynocologist to do this for 6 years. She said she will try.

With DD's weight issues, and the way that you have to be tilted with your head down during the surgery, there is still a chance that they might have to stop if breathing becomes an issue, but that if there isn't one, they will go forward with the surgery. So hopefully there won't be any issues and they can go in and see if there really is endometriosis and take care of it. The doctor thinks there is based on all her symptoms and on the fact that we've eliminated everything else.

I am so glad I looked into Virginia Mason. I wish I'd thought of them when the UW said no. Then maybe DD wouldn't have had to suffer all these years. Apparently its a familiar story that UW turns overweight people away. It also helps to have found a practice that specializes in this disease.

Even if nothing comes of the attempt at surgery, just having the nerve pain medicine is such an improvement in her quality of life already that it may help to make her a functional human being again.

The surgery scheduler will be calling next week after the insurance has been approved. I still can't believe someone is going to try to help her. This weird feeling of hope is something I am not used to anymore, but it is nice to be cautiously optimistic for the first time in forever.

Well, we are about to head down to Virginia Mason to see if the doctors there will actually do something about my daughter's high likelihood of endometriosis, or if we will yet again be faced with another set of doctors who are too worried about getting sued to do a surgery on a patient who is higher risk.

I don't hold out a lot of hope, to be honest. We've just heard it so many times. But these doctors do specialize in it and they've had to have had patients with my daughter's issues before, so maybe. Keep your fingers crossed for us today. Prayers for a doctor willing to do something would be greatly appreciated.

The money made it safely back to our checking account from the PayPal hack. I am still pretty annoyed with PayPal for letting this happen in the first place. Now I can go ahead and write out the rest of the bills, the tithe, and fund the funds I need to fund from Friday's paycheck. I held off to be sure the money would come through.

I am checking the account daily for a while just to be sure everything is safe. I hate this feeling of violation. We are so careful with our finances. It makes me furious that other people, other companies, are not careful with our finances. We have worked so hard to keep our credit clean and never be late with payments and to see that put in jeopardy leaves you with a sickening, sinking feeling in your stomach.

Paypal is very useless with its customer service. We were just really lucky to be able to solve everything ourselves, because they have their heads so far up their collective nether regions when it comes to helping people it is ridiculous. We were told there was nothing they could do about any of it and they weren't going to file anything with their fraud department since the money was still sitting there. I mean, seriously, you'd think they'd want to track these things, but no. They don't really care at all. We won't be doing business with them again.

On the plus side, I am feeling better today than yesterday. No more cracking in my ears. I still am exhausted and needing to sleep a lot, but the runny nose is less today than yesterday. I hope to have shaken this off by the end of the week. It would be nice to be fully well before Christmas. Even though we don't really have much planned, everything will be low-key, it would be much better to not spend the day in bed too sick to do anything.

I am not sure if I will make my dietbet now or not. We had a lot of takeout while I was too sick to cook and the sodium made me gain a few pounds back. I am hoping it will come off with homecooking for the next week, but I'm not 100% sure I'll get there. We will be down in Seattle on Wednesday, which means we will probably have one meal out if things take to long. We will pack a lunch, though, and hopefully that will be enough if we don't get stuck in rush hour traffic on the way home. Her appointment is at 2:45 and will likely run an hour, so I doubt we'll likely be leaving right at 4:00. Not the worst time, but not the greatest, either, to be on the freeway.

The last several days have been pretty awful and not just because of my cold, although that was bad, too. My ears blocked up on the 12th and only cleared this morning. If I thought I was dizzy and the world was spinning before, every time I tried to pop my ears it also felt like I was on a sail boat in rough water. I have had spinning before, but never up and down dizziness. I had to just close my eyes and sit still for several minutes and wait for it to stop. It is nice to be able to hear properly again. I'm still not over this thing, but it is down to a runny nose now and tiredness now, which is a huge improvement.

The bad part, financially is two-fold. One, someone used DH's Best Buy account to order a laptop. They swamped his email with Russian subscriptions to try to hide the message from Best Buy, but DH has it set up so that certain emails always go to the top. It was ordered by some guy named Todd Peterson in Oregon. DH was able to cancel it and changed the password on his Best Buy account. They had charged it to a credit card number that looked familiar, but wasn't one of our current credit card numbers. I think it might have been one of our numbers before we were issued new cards with new numbers due to identity theft six months ago. If so, I'm not sure how he managed to even order it. Anyway, it got taken care of it, but it was worrying.

Then we found out DH's Paypal account had been hacked. Someone changed the main email on it to a different one, but left his as a secondary. They also changed the language to Spanish. They had also withdrawn $1000 from our checking account, which I normally would have caught much sooner, but I've been sick and doing the bare minimum with finances. Fortunately the money was still sitting there in his account and once he was able to get into it and change it back into English he deleted that foreign e-mail and changed his password, set it so his phone had to be texted for anything on the account could be changed again, and deleted all cards or checking accounts from Paypal.

I went on to Paypal for myself and everything looked fine for me. As with all instances of identity theft so far, they have had to do with DH's info. I changed my password just to be on the safe side and set it up with my phone to be texted if anyone tried to change anything and then DH transferred the $1000 to me and I transferred it back to our checking account. Hopefully it will be there on Monday. Fortunately we had enough money in the account to cover everything we had paid out. I will be making it a priority to be checking our checking accounts every few days now, even when I feel like death.

So while it was a major hassle, at least no money was permanently stolen from us. The third thing that happened is the new computer DH bought is not working after a week. He bought it directly from HP and it quit functioning a week in. He decided to do a reset to factory settings and it erased the drive. So he's been trying to get HP support, but they have very limited hours and no one is there on weekends. Seems like a poor way to run a business in this day and age. He is going to send it back and either get his money back or get a new one.

I am hoping they will just give him a new one. I was worried about him buying it from them direct instead of through Best Buy, where we at least have Geek Squad protection. Of course, that was before the Best Buy hack. He did it because he could get a better computer that way for the same money. Not better if it doesn't work.

I hope this is the last we see of this nonsense, but I realize we may very well be dealing with this for some time. Stupid companies that can't protect our information. That $1000 could have caused a world of hurt if we'd lost it.

So DH's end of year bonus will be $1600 in cash, but that is before taxes, so not sure what it will be afterwards. Bonuses get taxed weirdly, I believe at 25%, so we'll only see $1200 of that, though some of it will come back in our tax refund. He will also get 1 percent of all wages earned put into his 401K with 100% matching, since we haven't hit 5% of income on our own yet. That will only be based on his earned wages since becoming a permanent employee, and he became one in July, I think.

His last paycheck says he has earned $37,192.50 since becoming a permanent employee, and it is probably going to be calculated after Friday's paycheck. So we should end up with something over $800 extra into the 401K. Nice little chunk of change. It's been a few years since DH has worked with a company that did bonuses. If it is calculated after the last paycheck of the month than it will be closer to $1000.

My cold seems to have moved up into my head now. After driving yesterday I decided I don't want to drive today in the storm we are having. I thought I was ready to drive yesterday, but I had trouble focusing and ended up running a red light. Thankfully it was at an empty intersection and no cops were around. That is the first time in my life I have run a red light. So clearly I am not clear-headed enough to drive yet. I will wait until Thursday before I try again assuming the cold continues to vacate the premises and I am not a dizzy-headed mess.

Tonight for dinner I am making beef pot roast in the Instant Pot, steamed potatoes in the Power Cooker XL, and broccoli in the microwave. No baby-sitting, no fuss, very little mess. It is nice having two electric pressure cookers when I don't have a stove. It makes things much easier for me.

I hope I am with it enough by Friday to do the banking and the grocery shopping. We are getting low on some items and with DH heading out to MIL's after work to work on cleaning out her attic and garage, he isn't able to do the shopping either. I'm making due, but it would be nice to have fresh greens again. I have enough potatoes, carrots, and plenty of onions to last the rest of the week, and I have canned green beans, and there are oranges and apples, so we won't go without. But it isn't salad. I might have cabbage, though. I could do cole slaw instead if I do.

I have a ton of canned, frozen, and freeze dried foods, but sometimes you just want that fresh produce factor in the middle of winter. We are getting low on bread and milk, though I think it will just make it to Friday. I am meal planning carefully, but I think we will pull it off okay.