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Archive for November, 2018

Weary

November 4th, 2018 at 06:30 pm

Right now I literally just want to go live somewhere else where there are rainbows and kittens and puppies and unicorns and no one is ever sick or in pain and people are kind to each other. I am just so tired, so overwhelmed, and aching so much. Everything hurts right now.

My c-reactive protein level is 14.3 mg/L. It is supposed to be less than 8. I have never had a flare this painful before. I am ridiculously swollen. What's the worst is it is in my back. It has never been in my back before, so it hurts to lay down and it hurts to sit up. When it is just in my arms or my legs or my hip I can usually find a semi-comfortable position, but there isn't one right now.

I am using a combination of valerian root, hydrocodone, sambra (a rub on cream), and a heating pad. I will be so glad when I can start on enbrel. I can't start on it until I get through with the antibiotics for my sinus infection. And we're waiting to see if my insurance will cover it. There's always that.

DD has gone to the ER twice in the last week for IV fluids and morphine. We had so many appointments last week that I am sure all of that sitting in waiting room chairs is what set off this round of inflammation. She's got a cytoscopy scheduled for the 15th so hopefully they will find out why she is still peeing blood.

I will check in when I can, but if I am not posting, the above is the reason why.