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Medical, Medical, It's Always Medical

September 28th, 2018 at 01:09 pm

I've been losing my financial focus a little bit lately. Taking care of Mom and shlepping her back and forth to physical therapy and taking my daughter to multiple doctors appointments and blood draws has been very draining and we have gotten fast food twice this week because of it. I had one day where I could barely move because I sat in waiting room chairs for 3 hours the day before. Rheumatoid Arthritis is a painful disease and I think I've used more painkillers this week than I have in a year. I've also been drinking caffeine which is not a habit I want to get back into, but it feels like it is the only thing that is keeping me going.

So far, these are the things that are wrong with my daughter:

Granuloma anularae
Gastroperesis
Hypothyroidism
Adrenal Insufficiency
Nearly legally blind in one eye
Brain damage from the skull fracture a few years ago, though she has mostly learned to work around that, it affects her reading and her ability to process numbers quickly
PCOS and/or Endometriosis
Hip Dysplasia (born with)
Depression and Extreme Anxiety (controlled with drugs)
Some as yet undiagnosed auto immune disease (blood markers for something, but they don't know what)

It is expensive to be this ill. I am hoping we can get her on disability at some point, that point being before she is 26 and gets kicked off our health insurance. Maybe sooner. That way it can help pay for her medical bills or to purchase an insurance plan for her. She is unable to function well because of the pain and exhaustion and frequent vomiting from the gastroperesis that leads to dehydration and malnutrition. Some days the medicine helps, other days it does not. She has to be super careful on what she eats and her choices are quite limited.

I do not think she will ever be self-sufficient and be able to leave home. Every time she seems to be getting better another malady turns up and she gets worse again. But at least they are finally finding things. Things that are not easily treatable, but still, having diagnoses helps mentally.

7 Responses to “Medical, Medical, It's Always Medical”

  1. Laura Says:

    That’s a heavy load to haul; nothing but prayers offered. Hopefully disability income can come sooner than later. Again, prayers for peace and comfort. (Hugs)

  2. CB in the City Says:

    I am so sorry about all your daughter's problems. I hope that the future will bring more solutions. She is very lucky to have a loving and dedicated mom like you!

  3. elitaylor646 Says:

    You probably know this already, but you could contact your ADRC. They might have ideas for your mom (if shes interested), you and your daughter. I've heard good tgings about Washington state's program as I work with a similar counterpart in another state.

  4. MonkeyMama Says:

    I know your daughter has gone through a lot, but wow. ((HUGS))

  5. creditcardfree Says:

    I'm so saddened by your daughter's condition. I think of her and you as her mother often. My prayers are for healing and support for you both.

  6. rob62521 Says:

    I am so sorry. Not only is sitting in waiting rooms uncomfortable, it is tough on the body, and add that to the stress of waiting and worrying. My heart goes out to you.

  7. Joanne Says:

    I am so sorry that your daughter is going through so much. I hope that she gets some relief,and starts to feel better. You are a very loving Mom. I hope th a t you feel better also.

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