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Finally, A Lead

June 20th, 2018 at 11:35 pm

Well, we finally have a lead on what is causing so many problems with DD. Her cortisol levels are extremely low. We've got an ACTH Stim test scheduled for the 29th and tomorrow we get her fitted for Holter Monitor which she will have to wear for 24 hours to check for heartbeat irregularities. She also, for the first time, finally came up as having something wrong with her thyroid, hypothyroidism. It's never tested high or low before, not even on the more specialized tests. The doctor could never believe she didn't have something wrong with it, though, based on all her symptoms. But now at least it registers and eventually she can be treated for it.

She can't start on thyroid medicine yet, though. Not until the results from the ACTH Stim test come back. The doctor did consult with an endocrinologist and he's put her on a medicine that will help with the cortisol levels without messing up the results of the Stim test.

Both tests will be on the current insurance where she has hit her out of pocket max. DH's job recruiting company will honor any deductible that has been met with the new insurance. That is just DD's, but that is where the primary expenses are. My stuff has not been processed through yet so I haven't officially met my deductible. Of course DH and DS have not, either. DS has had one prescription this year and nothing else through the insurance since the wisdom teeth removal was not covered. DH just has his one monthly prescription.

It looks like our costs will be pretty low for DD's surgery. Or rather MIL's costs, since she is paying DD's medical bills.

So we think DD has Addison's disease, but we have to wait on all the test results. This is just based on our research, not the doctor's, but we set him on this path. And it's possible she has Hoshimoto's as well. She does have an undiagnosed auto-immune disease. We've known that for a while based on blood work. She also has granuloma anularae, which is a different autoimmune disease.

It is taking such a long time for them to figure things out, but at least now I feel hopeful they are finally narrowing down what is wrong with her. We've felt for years like no one was taking this seriously. I only hope we have found our answers and if we haven't, that they won't brush it away again.

3 Responses to “Finally, A Lead”

  1. Rose. Says:

    I'm sorry DD is dealing with so much. I hope they can get it all straightened out.

  2. LuckyRobin Says:

    Me, too. It has been years of frustration.

  3. rob62521 Says:

    Although you have some things looming ahead, sure hope things start working out. At least you have some answers to DD's problem.

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